Privacy Policy

• provide patients with a tool for managing their condition.  The Website enables you to track your progress over time, whilst viewing your scores in the context of your own individual aspirations. In providing you with a platform to co-own your clinical episode, you may feel empowered to set personal aspirations, and are better informed to make treatment decisions with your clinician and direct your functional rehabilitation;
• improve the clinical care of patients;
• (with your approval) enable your healthcare professionals to use your data to inform clinical decision-making, and direct functional rehabilitation. Healthcare professionals with accounts on the Website are under no obligation to actively monitor their patients via this means and therefore it is at the healthcare professional’s discretion to contact the patient if they deem the data to be of clinical significance; and
• assess patient perspectives of care outcomes and treatment effectiveness in patients with long-standing hip, knee or shoulder conditions such that we (and other specific groups of individuals, who could include academic researchers or healthcare analysts) are able to determine which interventions achieve the most value for individual patients in the long term

• Email: dpo@imperial.ac.uk
• Telephone: 02075943502
• Post: Robert Scott, Data Protection Officer, Imperial College.

• when you complete and submit an application to register for the Website or on completing any form or questionnaire on the Website.  In the case of Patients, this may include certain kinds of medical information (see section  below ‘Types of information we collect’);
• from the information you provide via postings to forums and blogs and any other posting that you make to the public areas of the Website;
• from when you correspond with us by phone, email or by other means;
• from when you visit and use the Website including, but not limited to, traffic data, location data, weblogs and other communication data; and
• from information about you received from third parties, for example a friend, Doctor or other person who wants to tell you about the Website.

• your name, title, and date of birth;
• contact details including your email address, telephone number, postal address;
• technical information gained from your use of our Website, including your internet protocol (IP) address, browser type and version, time zone setting, browser plug-in types and versions, operating system and platform;
• information about your visit to the Website (such as which pages you visited, items you browsed, how you navigated the Website, and how long you spent browsing the Website); and
• if you are a health care professional acting in the course of your profession, your occupation, place of work or other professional information.

• your gender, weight and height;
• your living arrangements;
• your NHS Number;
• the names of your "Responsible Care Providers" and their place of work (as defined under Terms & Conditions);
• information relating to your medical condition, as may be updated by you from time to time, including as to:
  • your medical condition, including affected joint and type of condition, 
  • procedure details;
  • other medical disorders (including potentially your history in relation to disorders such as Arthritis, Diabetes, High blood pressure, Liver disease, Cancer, Disease of the nervous system, Kidney disease, Lung disease, Depression, Heart disease, Leg pain when walking due to poor circulation, Problems caused by stroke);
  • your disability status;
  • your mobility;
  • your level of self-care;
  • levels of pain relating to the condition;
  • levels of anxiety arising from the condition;
  • personal aspiration relating to the condition and progress as against those aspirations; and
  • other relevant information relating to the condition, including your usual lifestyle activities, e.g. work, study, housework, family or leisure activities.

• your Responsible Care Providers (namely GPs, Consultants and Physiotherapists); 
• (where you have approved such access) other Clinical Team Members who are assisting your Doctor or Physiotherapist with your clinical care (as verified by your Doctor or Physiotherapist); 
• (where you have approved such access and have inputted a a site-specific code – see below) the managers and senior administrative staff (Healthcare Analysts) at the hospital or other clinical unit providing you with care, whether that institution is a private healthcare provider or an NHS organisation;
• (if you are signed up to a specific academic/clinical study), to the Academic Researchers who are involved on such study; and
• the relevant national records system that monitors all admissions, appointments and attendances at NHS hospitals and/or private hospitals, as applicable (such as the Hospital Episode Statistics (HES) database administered by the Health & Social Care Information Centre (HSCIC, also known as NHS Digital), the National Joint Registry (NJR) or such other replacement national records system, and/or the database administered by the Private Healthcare Information Network (PHIN) concerning private healthcare, as applicable).

• use in aggregated form (ie collected together with similar data from other Patients) to provide information to other users of the website regarding certain metrics relating to specific medical conditions (such as average time for recovery, for example);
• sale or licensing of part or all of the aggregated data-set created from Patient's contributions to the website for commercial purposes (for example to manufacturers of implants or prosthetics) although we would normally only do so where such use or exploitation had the potential for improving the health and wellbeing of patients.

• the processing is necessary to enable us to perform our contract with you in relation to our making available of the Website; and/or
• the processing is necessary for the performance of a task carried out in the public interest.

• monitor and assess your condition and treatment options; and/or
• edit records relating to your medical condition or procedure.

• to share with Imperial College researchers, including those working at MSk Lab [The MSk Lab comprises a team of over 30 full-time surgeons, physiotherapists, scientists and engineers all seeking to understand musculoskeletal health and degeneration and to prevent and treat a wide array of problems associated with impaired mobility];
• if you signed up to a specific academic/clinical study, to share with the academic researchers who are involved on such study.

• to share with your Responsible Care Providers or Healthcare Analysts for the purposes of clinical auditing and/or revalidation; and
• to share with the Private Healthcare Information Network (PHIN), NHS Digital, and orthopaedic registries such as the National Joint Registry (NJR) as applicable for the purpose of clinical audits where required to do so by law. This includes the right for your             personal details and Patient Information to be held and used by contractors working on behalf of the Private Healthcare Information Network and/or NHS Digital.

• 20 years after the study has completed in relation to primary research data.